Navigating the road ahead
Living with ALS will change the way you do many things. Here are 10 ideas that may help motivate and prepare you to move forward more confidently.
Set realistic goals
Setting goals can help you focus on the things you want to accomplish. It may help to be patient, stay positive, and be realistic and specific in what you want to achieve.
When you need help, just ask
You might be determined to do as much as you can on your own. While this is a great attitude, be sure to ask for help when you need it. It is also a good idea to check in with your healthcare provider (HCP) about things you should not be doing on your own. Asking for help is good advice for your caregiver, too.
Do your best to plan ahead
Doing so can help ensure you have the things you need so you can feel more comfortable and prepared.
Staying connected to the people and things you love may help you face each day feeling more positive.
Make the most of tools and services
Talk with your HCP or care team to learn about helpful tools and services, such as physical therapy. This may help enhance your quality of life.
Make your home easier to navigate
Consider things like moving your bedroom to the first floor and installing a raised toilet seat. Modifications like these can help you get around more safely, easily, and independently.
There are also many types of medical equipment, assistive devices, and simple modifications that can help you do things on your own longer or make you more comfortable.
Consider the benefits of therapy
You and your family may have a lot of feelings, emotions, and concerns to work through. You may want to seek the guidance of a trained professional to help you work through them.
There will be many new and different things to learn about and consider. If you're ever unsure about anything, it's always a good idea to ask.
Set up a treatment plan
Work with your HCP to see what treatment options may be right for you.