People in the ALS community have a lot to share. Questions and fears, as well as stories of courage and hope. Now you could make a difference by sharing your own experiences of living with ALS and why RADICAVA® (edaravone) matters to you. Whether you Share Your Story by video or post, you could help others who live with ALS feel like they're part of a larger community of support and understanding.
Support the ALS Community &
Share Your Story
How Sharing Your Story could help others living with ALS
Whether a person living with ALS is searching for more answers about the disease, or for new ways to live each day with purpose, hearing from others with similar experiences may make a world of difference. When you Share Your Story about ALS and RADICAVA®, you could make an impact in how others live with ALS, too.
Once the gravity of ALS settles in and you catch your breath, you plan. The changing plan will cover daily living, long-term arrangements, and treatment options. When it came to RADICAVA®, I extensively researched any information available and had in-depth discussions with my neurologist and we decided it was the right choice for me.
Four ways to Share Your Story
You can participate in the Share Your Story program by making a video, writing an article, inspiring with a quote, or posting a message. Whichever way you prefer to Share Your Story, the important thing is that you're trying to make a positive difference in someone else's life. So choose a way that best expresses what you want to share, such as:
Making a video of you sharing your experience
Writing an article about something that matters in your ALS journey
Sharing an inspiring quote that gets you through tough times
Telling others on social media how you “Embrace Your Now” by living in the moment
The First Step In Sharing Your Story
If you are a patient on RADICAVA ORS® or RADICAVA® IV, or a caregiver to someone on this treatment, consider sharing your story about living with ALS. Hearing from others with similar experiences can make a world of difference.
If you’d like to be considered for Share Your Story, please complete the form below.
After you submit this form, you will be contacted about next steps.
Have questions about the Share Your Story program and want to talk with someone?
A JourneyMate Resource Specialist is ready to help you. Call toll-free 1-855-457-6968 between 9 AM and 9 PM ET, Monday through Friday.