FDA recognizes RADICAVA ORS^® as MAJOR CONTRIBUTION TO PATIENT CARE Call a JourneyMate Resource Specialist at 1-855-457-6968.

RADICAVA ORS^® is recognized by FDA for MAJOR CONTRIBUTION TO PATIENT CARE

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FDA recognizes RADICAVA ORS^® as MAJOR CONTRIBUTION TO PATIENT CARE Call a JourneyMate Resource Specialist at 1-855-457-6968.

The RADICAVA ORS^® Educational Communication Series

FDA recognizes RADICAVA ORS^® as MAJOR CONTRIBUTION TO PATIENT CARE Call a JourneyMate Resource Specialist at 1-855-457-6968.

Support the ALS Community and Share Your Story

People in the ALS community have a lot to share. Questions and fears, as well as stories of courage and hope. Now you could make a difference by sharing your own experiences of living with ALS and why RADICAVA ORS^® (edaravone) matters to you. Whether you Share Your Story by video or post, you could help others who live with ALS feel like they’re part of a larger community of support and understanding.

How Sharing Your Story could help others living with ALS

Whether a person living with ALS is searching for more answers about the disease, or for new ways to live each day with purpose, hearing from others with similar experiences may make a world of difference. When you Share Your Story about ALS and RADICAVA ORS^®, you could make an impact in how others live with ALS, too.

ALS has taught me to live each day to the fullest. I wish I’d had this reality going into it, and before, so that I could have lived my life a little differently. I’ll encourage any of my fellow PALS in this world to view each day as a blessing and to live it in the fullest that you possibly can.

- Ned, Living with ALS

How to participate in the Share Your Story program

You can sign up for a chance to Share Your Story by completing the form on this page
A select number of people with ALS and caregivers are chosen for the program each year, so you may not be able to participate if there are no spots available in the current year
You’ll be contacted by the Share Your Story team within a week of submitting your request to hear if you can participate and, if so, the next steps
If you’re selected to Share Your Story, you should expect to commit a total of about 4 hours of your time to complete the process of sharing your story

To participate in the Share Your Story program, you must be prescribed RADICAVA ORS^® or you must be the caregiver of someone prescribed RADICAVA ORS^®.

Four ways to Share Your Story

You can participate in the Share Your Story program by making a video, writing an article, inspiring with a quote, or posting a message. Whichever way you prefer to Share Your Story, the important thing is that you’re trying to make a positive difference in someone else’s life. Sharing your story on social media could help others living with ALS feel like they’re part of a larger community of support and understanding. The content you post would share your experience of living with ALS. To qualify, you must have either a personal blog or public Facebook page with 300+ followers. So choose a way that best expresses what you want to share, such as:

Making a video of you sharing your experience

See example >

Writing an article about something that matters in your ALS journey

Sharing an inspiring quote that gets you through tough times

Telling others on social media how you “Embrace Your Now” by living in the moment

See Share Your Story videos and written stories from other PALS and CALS.

Learn more

The First Step In Sharing Your Story

If you are a patient on RADICAVA ORS^®, or a caregiver to someone on this treatment, consider sharing your story about living with ALS. Hearing from others with similar experiences can make a world of difference.

If you’d like to be considered for Share Your Story, please complete the form below.

After you submit this form, you will be contacted about next steps.

First Name

Last Name

Email Address

ZIP Code

Phone Number (optional)

A phone number will help us to contact you, if needed, regarding updates, new information about RADICAVA ORS^®, or market research

This phone number is:

MobileHome

I agree to receive updates and information about ALS and treatment options from JourneyMate by SMS text messages. Message frequency varies. Text HELP to 85427 for help. Text STOP to 85427 to end. Message and data rates may apply. Read Text Message Terms and Conditions and Privacy Policy.

Street Address (optional)

We may use this information to mail you communications or resources as they become available.

Apt/Suite (optional)

City (optional)

State (optional)

I am a:

Patient

Caregiver

I am currently using RADICAVA ORS^®

I'd like to share my RADICAVA ORS^® experience with others. Please contact me!

I'm interested in creating (select all that apply):

Video content

Written content

Social media content

^aI agree that I have read this Consent Form and by providing my personal information and clicking SIGN UP FOR UPDATES, I understand and agree that Mitsubishi Tanabe Pharma America, Inc. (“MTPA”), as well as its collaborators, affiliates, and agents (third parties working with, or on behalf of, MTPA) (together, the “MTPA Parties”), may use my personal information to: send me periodic or recurring communications that provide information and/or materials related to disease state, products, promotions, services, and research studies; ask my opinion about such information and topics, including performing market research and disease-related surveys; contact me about other products and services offered by MTPA; share my personal information with one another to perform these activities; and de-identify it for use in performing research, education, business analytics, marketing studies, and other commercial products.

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Have questions about the Share Your Story program and want to talk with someone?

A JourneyMate Resource Specialist is ready to help you. Call toll-free 1-855-457-6968 between 9 AM and 9 PM ET, Monday through Friday.

Learn more

Support the ALS Community and Share Your Story

How Sharing Your Story could help others living with ALS